Part 2 of our “Meet our Kids” series. Parents around the world share what they love about their unique children living with 2q23.1 MDS/MAND.
Our children living with 2q23.1 MDS/MAND are pretty amazing!!! Part 1 of our “Meet our Kids” series where parents share what they love about their unique children.
I have a love hate relationship with social media. I love that I can keep up with what my friends and family are doing when I don’t have time to catch up with them, I love seeing people’s photos of holidays and events that I haven’t experienced so I can live through them and itContinue reading “How to Dehusk Corn and other uses of Social Media “
Islas first seizure that I witnessed was when I was on the phone to my Dad and Isla was banging the pots and pans on the kitchen floor when she was a toddler. I just remembered telling dad it looks like Isla has had a fit. It happened so quickly that I afterwards didn’t knowContinue reading “The confusing world of seizures”
Isla was born after a normal pregnancy and is the 3rd child in our family. She progressed normally reaching all her milestones normally. We sought help early as she wasn’t babbling or talking. Firstly she was referred to ENT and had a tongue tie release and adenoidectomy in October 2010 and grommets inserted. When the surgeon toldContinue reading “A diagnosis and a little background”