Written for Firefly Friends Blog https://www.fireflyfriends.com/us/blog/what-to-do-after-getting-a-diagnosis/ I regularly try to think back before we had our 9 year old daughter Isla, and try to recall how I viewed children and adults with disabilities. I think I avoided them to be honest. I think they made me feel uncomfortable as I didn’t know how to relate toContinue reading “What to do after getting a diagnosis”
Part 2 of our “Meet our Kids” series. Parents around the world share what they love about their unique children living with 2q23.1 MDS/MAND.
Our children living with 2q23.1 MDS/MAND are pretty amazing!!! Part 1 of our “Meet our Kids” series where parents share what they love about their unique children.