Scheduling the holidays

Our daughter Isla was born with a rare chromosome disorder causing autism and epilepsy. Unlike most neurotypical children she cannot entertain herself for long. She can watch TV or any other screen all day if you’d let her but cannot self direct very well and often needs someone alongside. Left to her own devices thisContinue reading “Scheduling the holidays”

Why I’m doing dōTERRA

I have been on mummy duty for the past 18 years, and a “special needs” mummy for the past 10 years. I have been a milk bar, face and bottom wiper, teacher, cook, taxi driver, cleaner, ironer, lunch maker and lawn mower. I have also been a working mother and a renovation’s project manager. AContinue reading “Why I’m doing dōTERRA”

Getting ready for puberty

Written for Firefly Friends Although Isla’s sisters have completely different personalities there has been many similarities in their journey from babies to young adults. It started with a fairly predictable love of everything pink which progressed to purple and then light blue. They tried every activity under the sun and we watched many self choreographedContinue reading “Getting ready for puberty”

Reality check with the Educational Psychologist

Written for Firefly Friends We took Isla to an Educational Psychologist to try and get a better picture of where she is at. She has made so much progress in recent times. In particular her verbal language and comprehension have improved but I suspected large gaps remain. I hoped to get some ideas on how to tackle herContinue reading “Reality check with the Educational Psychologist”

10 Game Changers for Development

Our daughter Isla has a rare chromosome disorder 2q23.1 Microdeletion Syndrome (aka MAND). This causes autism, development delay and epilepsy. We are in such a good place now with Isla. Ten years old seems to be the magic age where everything has come together for us. No she hasn’t just become neurotypical all of aContinue reading “10 Game Changers for Development”

The Big Screen Fast

Written for Firefly Friends I cannot believe the difference in Isla since removing screens 5 weeks ago. She had a few to chose from! The Ipad, the laptop, the computer and the Nintendo Switch, I stupidly bought her for Christmas thinking it would help with her social interaction….it didn’t! The humble TV was never switchedContinue reading “The Big Screen Fast”

Isla’s Device Fast – The First 4 Weeks (uncut)

Day 1 Luckily Isla slept in until 6.30. Normally upon waking she grabs her iPad and disappears into a virtual world catching up on the latest Stampy video. This morning she scoured the house for a device. Ran down to check the computer but the cord had been removed ! Looked a bit panicked forContinue reading “Isla’s Device Fast – The First 4 Weeks (uncut)”

The Unexpected Joy of Writing

Written for Firefly Friends In this modern world it is relatively normal for people to share a lot about their lives on the internet. Writing and sharing about our journey raising a child with special needs is no different. I have always enjoyed writing. It wasn’t until our daughter was diagnosed with a rare syndrome and autismContinue reading “The Unexpected Joy of Writing”

School & Beyond

Written for Firefly Friends Our eldest daughter has just finished school. She is neurotypical and has a bright, exciting future in front of her. She is fortunate to be able to attend University this year. She will make new friends and have new experiences. She is responsible, mature and independent. Although we don’t know whatContinue reading “School & Beyond”