Mission…Ride a Bike!

Our 11 year old daughter Isla doesn’t have much stamina. She has to work much harder than most to coordinate those easy movements we do subconsciously. My husband and I are keen walkers and ideally would love Isla to be able to join us. However we are not able to cover any distance as she tiresContinue reading “Mission…Ride a Bike!”

Scheduling the holidays

Our daughter Isla was born with a rare chromosome disorder causing autism and epilepsy. Unlike most neurotypical children she cannot entertain herself for long. She can watch TV or any other screen all day if you’d let her but cannot self direct very well and often needs someone alongside. Left to her own devices thisContinue reading “Scheduling the holidays”

Getting ready for puberty

Written for Firefly Friends Although Isla’s sisters have completely different personalities there has been many similarities in their journey from babies to young adults. It started with a fairly predictable love of everything pink which progressed to purple and then light blue. They tried every activity under the sun and we watched many self choreographedContinue reading “Getting ready for puberty”

Reality check with the Educational Psychologist

Written for Firefly Friends We took Isla to an Educational Psychologist to try and get a better picture of where she is at. She has made so much progress in recent times. In particular her verbal language and comprehension have improved but I suspected large gaps remain. I hoped to get some ideas on how to tackle herContinue reading “Reality check with the Educational Psychologist”

Horse Riding Therapy

Written for Firefly Friends I soon realised in this unexpected world of special needs, activities I had enjoyed with Isla’s older sisters were now off limits. Dancing, gymnastics, athletics and cheerleading were the ones I had previously known like the back of my hand. They were the same ones that I now knew Isla couldn’tContinue reading “Horse Riding Therapy”

10 Game Changers for Development

Our daughter Isla has a rare chromosome disorder 2q23.1 Microdeletion Syndrome (aka MAND). This causes autism, development delay and epilepsy. We are in such a good place now with Isla. Ten years old seems to be the magic age where everything has come together for us. No she hasn’t just become neurotypical all of aContinue reading “10 Game Changers for Development”

The Big Screen Fast

Written for Firefly Friends I cannot believe the difference in Isla since removing screens 5 weeks ago. She had a few to chose from! The Ipad, the laptop, the computer and the Nintendo Switch, I stupidly bought her for Christmas thinking it would help with her social interaction….it didn’t! The humble TV was never switchedContinue reading “The Big Screen Fast”

Isla’s Device Fast – The First 4 Weeks (uncut)

Day 1 Luckily Isla slept in until 6.30. Normally upon waking she grabs her iPad and disappears into a virtual world catching up on the latest Stampy video. This morning she scoured the house for a device. Ran down to check the computer but the cord had been removed ! Looked a bit panicked forContinue reading “Isla’s Device Fast – The First 4 Weeks (uncut)”

Turning 10!

On New Years Day Isla will be 10 years old! Double Digits! With Isla being in a mixed age class at school, age becomes a little irrelevant. The only time I realise her age doesn’t match with her development is when I go looking for clothing. It still catches me off guard when the cuteContinue reading “Turning 10!”

Fun Outdoor Therapies

Originally written for Firefly Friends. https://www.fireflyfriends.com/blog/fun-outdoor-therapies-for-the-summer-break For a child with autism, typical school holiday activities can cause sensory overload and stress. We tend to avoid the crowds and make our own fun that usually doubles as home-based therapy. The best therapy for our 9-year daughter with autism, is the type when she doesn’t know she isContinue reading “Fun Outdoor Therapies”