Welcome to Simply Isla !!!

My name is Sara Stythe and I am a mother of 3 beautiful girls. Our youngest daughter Isla has 2q23.1 Microdeletion Syndrome (recently known as MAND) which causes autism, epilepsy and developmental delay.

So what am I trying to achieve by sharing our knowledge and journey?

A place of reassurance
When first diagnosed I searched the internet for other people’s stories to give me some idea of what to expect. Over the years I have built up quite a bit of knowledge about autism, sensory processing, early intervention and so on. This is a place where people can come when they have been newly diagnosed, looking for advice or reassurance when they have received the life changing news that raising their child won’t be as they expected.  Hopefully by reading my posts, resources and links they will realise they are not alone.

Education/Knowledge = Awareness/Acceptance
To make the world a better place for our children growing up with disability, I continue to try and raise awareness through education and sharing experiences.  Everybody has their own story but by sharing ours hopefully will promote awareness and more understanding of what it is like raising a chid with special needs.

To read a little bit more about our journey and how Isla was diagnosed click on the following link which will take you to the post Diagnosis and a little background

If you wish to receive notification of newly published posts please subscribe by email.

Thanks, Sara

Published by Sara Stythe

Hi my name is Sara Stythe and I am a mum of 3 beautiful girls. This is a place to share knowledge, resources and information I have learnt along the way on this unexpected journey with our unique youngest daughter. Isla is missing a tiny bit of her 2nd chromosome (2q23.1 Microdeletion Syndrome, recently known as MAND) causing autism, epilepsy and development delay. If you would like to receive my new blog posts by email you can subscribe. Thank you

13 thoughts on “Welcome to Simply Isla !!!

  1. Well done Sara you have put an enormous amount of work into this site which will be helpful to many.

    Like

  2. I love reading about Isla. We have our own 2qtie Isla too and it’s interesting to hear about your experiences a little further on in the journey

    Like

    1. They are all different as we know but there are differently similarities between all the children 🙂

      Like

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