My name is Sara Stythe and I am a mother of 3 beautiful girls. Our youngest daughter Isla has 2q23.1 Microdeletion Syndrome (recently known as MAND) which causes autism, epilepsy and developmental delay.
So what am I trying to achieve by sharing our knowledge and journey?
A place of reassurance
When first diagnosed I searched the internet for other people’s stories to give me some idea of what to expect. Over the years I have built up quite a bit of knowledge about autism, sensory processing, early intervention and so on. This is a place where people can come when they have been newly diagnosed, looking for advice or reassurance when they have received the life changing news that raising their child won’t be as they expected. Hopefully by reading my posts, resources and links they will realise they are not alone.
Education/Knowledge = Awareness/Acceptance
To make the world a better place for our children growing up with disability, I continue to try and raise awareness through education and sharing experiences. Everybody has their own story but by sharing ours hopefully will promote awareness and more understanding of what it is like raising a chid with special needs.
To read a little bit more about our journey and how Isla was diagnosed click on the following link which will take you to the post Diagnosis and a little background
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